It seems like the news never gets better...
Yesterday the doctor heard a heart murmur so she ordered a cardio echo to see if the pulmonary hypertension had gotten any better from the nitric oxide. The cardiologist said it is still severe and there is a lot of extra pressure on the right side of the heart. If not treated it can cause heart failure on the right side. Therefore they are upping his dosage of the medicine for this. It is a waiting game to see if it helps, and the doctors don't want to up it too much because it is still kind of an experimental drug and they don't know all of the side effects, short and long term.
We had a long talk with the doctor today about the plan. Right now we are waiting for a couple of weeks before getting another echo to see if the medicine worked for the pulmonary hypertension. If it didn't, then we may try steroids again, or possibly a tracheotomy (put back on the ventilator, but the tube will be surgically put into his trachea on throat area, can be on this anywhere from 6 months to 2 years).
As you can see things aren't good at this point. What Dan and I really need right now is lots and lots of prayer that the medicine he is on works, and he gets better or shows improvment very soon. We both are trying to keep the faith and not lose hope, but we are pretty broken down at this point. God says he won't give us more than we can handle, and I'm thinking, "how much more can we really handle!?" We just need a miracle for Gabe.
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You can count on our prayers. God has really watched over Gabe so far, so we're just going to depend on Him to finish the good work that he started. Hang in there for the miracle...lov grandma and grandpa!
ReplyDeleteWe love you! We are praying!
ReplyDeleteWe're so sorry to hear that you guys have gotten more discouraging news...Joe and I will continue praying for Gabe and for that miracle- Gabe is already such a beautiful miracle, just keep clinging to Him and He will walk with you through this.....let us know if there's any way we can help in any way. We'll keep praying~ trust me when I say that you guys are on our hearts continually. Love to you all~ (and give Gabe a little smooch!) :)
ReplyDeleteHey guys, I am so sorry you guys are having to go through this, I can't imagine the stress and heartache. I am begging you to please let me know if there is anything I can do for you AT ALL!! Of course you will always be in our orayers and are constantly on my mind. God is with you through all of this. I know that you know that, but I so understand how it can be easy to lose faith!! Just try to continue to leave Gabe and his health at the Lord's feet, that is the best thing for him. I love you all so much and am here for you in any way possible.
ReplyDeleteLove Steph
We will continue praying. Caleb and Hannah make sure we remember him at each meal prayer and before bedtime, along with all of the times the Lord brings him to mind.
ReplyDeleteThanks for sharing your heart. I have been and will continue praying for you both and for Gabe. I pray you will feel God's arms around you all. Viveca Phelps
ReplyDeleteOur thoughts and prayers are with you. Thanks for keeping us posted.
ReplyDeleteWe pray for you each day. Keep your eyes upon Jesus. We know you will look to Him for strength in this stressful time. Our love to all of you. Grandpa Marlyn and Kathy
ReplyDeleteWe love all three of you and are praying that God will do something so miraculous that there will be no doubt that it was He alone that did it. In the meantime, we're praying that He'll wrap His loving arms around you and draw you close.
ReplyDeleteDan and Shannon...
ReplyDeletePraying for a miracle for baby Gabe. Praying too that the overwhelming feelings you both must have will be replaced with peace and a complete confidence that Gabe is in God's hands. Your trust in Him is humbling to me. Love you all...
Lisa