Appointment Snafu. Again...

We were discharged from the NICU followup clinic a couple of weeks ago. Gabe was getting too big (pediatric) and he also was backsliding on his oxygen requriement. They set us up with a Pulmonologist specialist to follow him and get him off of his oxygen dependency. It was sad to leave the doctors and nurses that we have trusted with Gabe's care since he was less that 2 pounds. Now Gabe is 9 times larger weighing in over 18 Pounds. He still is tethered to the oxygen tank and has not been able to eat enough calories on his own to get the feeding tube yanked out for good. However, he has been pulling out the feeding tube on his own more and more. We are ready to have all the tubes off of his face. We have scheduled the feeding tube surgery for May 13th. They will be removing it from his nose and installing it directly thru his stomach.

Today we had a an appointment with the CT machine at 8 AM (pictured below). The Pulmonologist wanted to get a better picture of his left lung to aid in treating his poor respiratory status. Unfortunately for us, their was no coordination done within the hospital to schedule the required anesthesiologist and the scan had to be canceled. Infants are required to be sedated so they don't wiggle around and ruin the picture. Gabe promised not to wiggle, but the staff didn't trust him. They said they didn't want to expose him too multiple scans and the radiation if the picture didn't turn out. We are planning on having the scan rescheduled to the date of his Gtube proceedure, since he will need to be sedated for that too.