Feeding Tube

Last night we had the Home Health Nurse attempt to put in a feeding tube. She was unsuccessful :( and had us go to Children’s Mercy ER (downtown KCMO) to get it put in right. It was a long night, but we got the tube put in and are now able to get Gabe a full feed even if he won’t suck it down himself. Hopefully it will only be short term and get Gabe over the hump of not gaining weight and eating better.

Below are some pictures prior to the feeding tube going in.

Update

Yesterday we had a doctor's visit because Gabe hasn't been eating very well during the last couple of weeks. Gabe doesn't take his bottle from about 4 AM thru Noon. We have tried everything possible but his strong will and gag reflex prevail. The doctor's exam didn't shed any light on why he has the lack of appetite. He also had some blood tests done at Children's Mercy which also didn't show anything unusual.

Gabe has to gain weight and this recent weight loss could send him back to the Hospital. He doesn't seem unhappy or upset that he hasn't eaten anything for half the day. It is really frustrating for us parents knowing that he is regressing and there isn't anyway that we can stop it. We have another visit with Home Health Nurse this Thursday and may have the option to use a feeding tube. This is a step backward but could keep him out of the hospital. We should be getting some consultation from a feeding expert soon.

Please pray that regains his appetite and takes full feeds.