tag:blogger.com,1999:blog-87833001706920067542024-03-13T15:01:35.946-05:00Baby GabeGabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.comBlogger61125tag:blogger.com,1999:blog-8783300170692006754.post-21085328877843387132010-08-28T12:43:00.002-05:002010-08-28T13:06:57.165-05:00Crawling<p>Gabe's lungs are strong enough for not needing the supplemental oxygen during the day and he is enjoying the freedom away off of the oxygen tubing.</p><p> </p><p><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwDg91iRoeY8yvYea37AppX1whjZ6sY9JmKhy2v3n-ZCzhBQRRiEqN6Ar6thGIwn77KpKLi0s2nGkveRFXFFQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></p>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com4tag:blogger.com,1999:blog-8783300170692006754.post-77419590244924628792010-04-30T14:03:00.004-05:002010-04-30T14:25:14.705-05:00Appointment Snafu. Again...We were discharged from the NICU followup clinic a couple of weeks ago. Gabe was getting too big (pediatric) and he also was backsliding on his oxygen requriement. They set us up with a Pulmonologist specialist to follow him and get him off of his oxygen dependency. It was sad to leave the doctors and nurses that we have trusted with Gabe's care since he was less that 2 pounds. Now Gabe is 9 times larger weighing in over 18 Pounds. He still is tethered to the oxygen tank and has not been able to eat enough calories on his own to get the feeding tube yanked out for good. However, he has been pulling out the feeding tube on his own more and more. We are ready to have all the tubes off of his face. We have scheduled the feeding tube surgery for May 13th. They will be removing it from his nose and installing it directly thru his stomach.<br /><br />Today we had a an appointment with the CT machine at 8 AM (pictured below). The Pulmonologist wanted to get a better picture of his left lung to aid in treating his poor respiratory status. Unfortunately for us, their was no coordination done within the hospital to schedule the required anesthesiologist and the scan had to be canceled. Infants are required to be sedated so they don't wiggle around and ruin the picture. Gabe promised not to wiggle, but the staff didn't trust him. They said they didn't want to expose him too multiple scans and the radiation if the picture didn't turn out. We are planning on having the scan rescheduled to the date of his Gtube proceedure, since he will need to be sedated for that too.<br /><br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEccP0gYPyL1vwmdEQKbL7Ma11dOc6UVt4EgTC3Xa6rQiRbW-r28iF6E6QDEeOYL1-SDh7qmwOt_3aqz3BzFqbqXdqX5oB81aXLNuTiObjrYMWdx-Ru95r-E2cJb2XlatnMdH-0Tn_KsE/s1600/CT.jpg"><img id="BLOGGER_PHOTO_ID_5466008669821975378" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 300px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEccP0gYPyL1vwmdEQKbL7Ma11dOc6UVt4EgTC3Xa6rQiRbW-r28iF6E6QDEeOYL1-SDh7qmwOt_3aqz3BzFqbqXdqX5oB81aXLNuTiObjrYMWdx-Ru95r-E2cJb2XlatnMdH-0Tn_KsE/s400/CT.jpg" border="0" /></a><br /><div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com6tag:blogger.com,1999:blog-8783300170692006754.post-33176445768974087992010-02-17T13:07:00.003-06:002010-02-17T13:25:35.548-06:00AnswersIt has been so long since we've posted anything, and am not sure if anyone still checks in. If so, we recently got some answers about Gabe's eating.<br />He had a swallow evaluation done where he drinks barium and they take xrays to see what he is doing with the food and if he swallows properly. We found out that he has a severly delayed swallow which leaves his trachea wide open to accidently breathe in food. He could control the formula better when it was a necture consistency and a cold temperature woke up his mouth so he would eat a tad better. The reason he has a delayed swallow is because the nerves that trigger the swallow were either damaged from the respirator or burned from his acid reflux. These nerves are not things that will heal. As Gabe gets older, he'll learn to adapt to this condition. What we learned may not keep him from a G-tube (feeding tube going through the abdomen into stomach), but at least we have some understanding about the "whys."<br />He was recommended for a G-tube recently. We still need to have a consult with our Gastroenterologist about this. They are recommending a surgery for the reflux where they wrap part of the stomach around the place the esophagus meets the stomach to reduce/elimnate the reflux. Our concern with the surgery is we have heard from many sources (doctors included) that there frequently are very serious side effects and complications as a result from the surgery. I have been having trouble sleeping thinking about this and our options, if we really have any other options. We should know a lot more after our consult the beginning of March.<br />Gabe also has another surgery that will be performed after he gets off oxygen. We are assuming another 2 months on the O2. <br />He is gradually getting weaned off of medications, which is so exciting to see some progress. He is only on 2 precriptions now!<br />Gabe is definitely growing and developing in other areas. This past week he has discovered his voice and new noises he can make. At first it was cute, but that's wearing off ;) <br />We have been very blessed so far during the cold and flu season that he hasn't been sick. He has enough things on his plate, that he really doesn't need that to deal with also.<br />Thank you for checking faithfully. We are blessed to have people like you praying for our little man.Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com6tag:blogger.com,1999:blog-8783300170692006754.post-35993360795239327332009-12-19T22:01:00.002-06:002009-12-19T22:05:44.186-06:00Visit from Santa<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOdUb7mttEtrB9kyi9Ii1bfNQZ1Oq2CJiY4A4VluaDv2uOv9nKO0ny0kUW9UiHA72vBsEHzUq4TtSX_7TfIpTwqm8t0CkcA8VS_uj0oWvAme3pAvOvofA3-M5-9s7Qidu4VTLTF9Pyv0Q/s1600-h/100_0448.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5417164656868526290" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOdUb7mttEtrB9kyi9Ii1bfNQZ1Oq2CJiY4A4VluaDv2uOv9nKO0ny0kUW9UiHA72vBsEHzUq4TtSX_7TfIpTwqm8t0CkcA8VS_uj0oWvAme3pAvOvofA3-M5-9s7Qidu4VTLTF9Pyv0Q/s400/100_0448.JPG" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1uFkn6VhFMQnzcDn_08TVlewZkRQzSR7HrF6tIb_-qAWbKfw6BAkiwtGlfwKu6IcngWFx6z71PK6WPqVIbpFIRJ1etqHrG0fYmJyuiRraJQDg0K11fCsoSVhqOMMye69AJlVUBj9neh8/s1600-h/100_0448.JPG"></a><br /><br /><div></div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com1tag:blogger.com,1999:blog-8783300170692006754.post-88380784374979398832009-12-09T19:37:00.002-06:002009-12-09T19:50:44.448-06:00Feeding Tube Going Well<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXai7QRjzD8r8jN5-7SzmOqub9yVn9LVU76-EMWUuHQZP2aTr95XwBy1RFkGfYoxD-IBucz7qABoPHP7SsADH1PBH0z_WOl_HSYi161zy8q_bn935pqkM9sBJ35rC-VIGFWeprMDvFnQ/s1600-h/pacifier.jpg"><img id="BLOGGER_PHOTO_ID_5413418847997412642" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 320px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXai7QRjzD8r8jN5-7SzmOqub9yVn9LVU76-EMWUuHQZP2aTr95XwBy1RFkGfYoxD-IBucz7qABoPHP7SsADH1PBH0z_WOl_HSYi161zy8q_bn935pqkM9sBJ35rC-VIGFWeprMDvFnQ/s320/pacifier.jpg" border="0" /></a><br /><div>Gabe has been doing well with the feeding tube, and is gaining around an ounce a day! Whatever he doesn't take by mouth we put down the tube, and then he has a pump going all night.</div><br /><div>I have finally figured out his eat/sleep schedule and am enjoying my time during the day with him. He is so much fun and usually a very happy boy.</div><br /><div>We have an appt. with a feeding team next Wed. to determine why he isn't eating well. I talked with one of the team members on the phone, and she thought from what I was telling her, it is reflux. She said that they learn to avoid the pain, by not eating much. It was an interesting conversation.</div><br /><div>Gabe loves watching Roxy (0ur dog) play and he will sit/stand and just smile and laugh at her. Roxy has turned out to be a great baby entertainer. Gabe is so beautiful and I just feel so blessed this holiday season. </div><br /><div></div>Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com3tag:blogger.com,1999:blog-8783300170692006754.post-26239090596498760482009-11-19T09:06:00.001-06:002009-11-19T09:09:19.781-06:00Feeding TubeLast night we had the Home Health Nurse attempt to put in a feeding tube. She was unsuccessful :( and had us go to Children’s Mercy ER (downtown KCMO) to get it put in right. It was a long night, but we got the tube put in and are now able to get Gabe a full feed even if he won’t suck it down himself. Hopefully it will only be short term and get Gabe over the hump of not gaining weight and eating better.<br /><br />Below are some pictures prior to the feeding tube going in.<br /><br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCVKwX5xY5IlA-0MoLe3YFZ50dM624HxiTj-N-lOrQ-ikrN4VvH_Lj49qT_Bh4Ql78ojlHBrJRGhAEXhBo50J8LuSNLgKFcEoW2WxNAuaFP1uZ-QgJ707X2fBlmIo8EzucSqFFolOkz4k/s1600/4.jpg"><img id="BLOGGER_PHOTO_ID_5405831650006086482" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCVKwX5xY5IlA-0MoLe3YFZ50dM624HxiTj-N-lOrQ-ikrN4VvH_Lj49qT_Bh4Ql78ojlHBrJRGhAEXhBo50J8LuSNLgKFcEoW2WxNAuaFP1uZ-QgJ707X2fBlmIo8EzucSqFFolOkz4k/s400/4.jpg" border="0" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKawKrpcPvkOKTle6n4cCrtfpkkHmN9WJdUHod2mXYgBfVV8ms7k4U7t0DVZNvd2a7au8YYiX_DLAjTm0FZm0PdeCUiPKKwFziDpwvYovJrfjtrVeKlLfz9pmPjS-_od3leNVofdVnuz0/s1600/3.jpg"><img id="BLOGGER_PHOTO_ID_5405831644586146018" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKawKrpcPvkOKTle6n4cCrtfpkkHmN9WJdUHod2mXYgBfVV8ms7k4U7t0DVZNvd2a7au8YYiX_DLAjTm0FZm0PdeCUiPKKwFziDpwvYovJrfjtrVeKlLfz9pmPjS-_od3leNVofdVnuz0/s400/3.jpg" border="0" /></a><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj96ms2jW3fcTk6xEFzeT9p7yWTVVLm6-zIGgpC2xdNb8GldYrBS-MsdJazOP2Xpr6ipvj-QGSJbWd7WUUhRE3CUumPAPjP5uUtRipueu8WDVm_blJ6VGjf8PKVqyf9BzIKPZfm3Qg54NM/s1600/2.jpg"><img id="BLOGGER_PHOTO_ID_5405831645452074658" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj96ms2jW3fcTk6xEFzeT9p7yWTVVLm6-zIGgpC2xdNb8GldYrBS-MsdJazOP2Xpr6ipvj-QGSJbWd7WUUhRE3CUumPAPjP5uUtRipueu8WDVm_blJ6VGjf8PKVqyf9BzIKPZfm3Qg54NM/s400/2.jpg" border="0" /></a><br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3w2kmo_ORrcomhmW9nrEew2pxHyu3DJcc-x8_hUxequcV9lrp6emTpGHAROXGX16_1Wc9pDo_PLhrJwv66CQ2oac7IuHzFKB_diOQYwE3Pq4ZkVqT96kCFgZd5cooXeTrOvMOBe-C9cw/s1600/5.jpg"><img id="BLOGGER_PHOTO_ID_5405831640671965762" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3w2kmo_ORrcomhmW9nrEew2pxHyu3DJcc-x8_hUxequcV9lrp6emTpGHAROXGX16_1Wc9pDo_PLhrJwv66CQ2oac7IuHzFKB_diOQYwE3Pq4ZkVqT96kCFgZd5cooXeTrOvMOBe-C9cw/s400/5.jpg" border="0" /></a> <div></div></div></div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com5tag:blogger.com,1999:blog-8783300170692006754.post-50405193482217232362009-11-18T11:58:00.002-06:002009-11-18T12:11:55.019-06:00UpdateYesterday we had a doctor's visit because Gabe hasn't been eating very well during the last couple of weeks. Gabe doesn't take his bottle from about 4 AM <span class="blsp-spelling-error" id="SPELLING_ERROR_0">thru</span> Noon. We have tried everything possible but his strong will and gag reflex prevail. The doctor's exam didn't shed any light on why he has the lack of appetite. He also had some blood tests done at Children's Mercy which also didn't show anything <span class="blsp-spelling-corrected" id="SPELLING_ERROR_1">unusual</span>.<br /><br />Gabe has to gain weight and this recent weight loss could send him back to the Hospital. He doesn't seem unhappy or upset that he hasn't eaten anything for half the day. It is really frustrating for us parents knowing that he is regressing and there isn't anyway that we can stop it. We have another visit with Home Health Nurse this Thursday and may have the option to use a feeding tube. This is a step backward but could keep him out of the hospital. We should be getting some consultation from a feeding expert soon.<br /><br />Please pray that regains his appetite and takes full feeds.Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com3tag:blogger.com,1999:blog-8783300170692006754.post-74726725123453823792009-10-18T21:14:00.002-05:002009-10-18T21:28:25.967-05:00At Home.... Finally!<div align="center">Spending time with the pup. We think they will be buds!</div><br /><img id="BLOGGER_PHOTO_ID_5394129689553658210" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 300px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjG3dckiKvt8ZXF8UhA85OiPRTWIB2dElpDwF6Nv24yf06-sttywau45qdgCfpUIrhoD3lCVxRCGMfhWkfiWlbZlmyBA92Oz5Q-IFyk3kr2cJcrjn6l-hJLrq8tuScCxbSt5R_BpvOudRc/s400/100_0418.jpg" border="0" /><br /><div align="center">Tummy Time :)</div><br /><br /><img id="BLOGGER_PHOTO_ID_5394129699535041298" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 300px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGGMLTj_aAqkQFfSf_cG0nNGNVUte9MztK1sXD8ReVqhu_2BzSKPsPt8rzxawQg2gMnwmFBQwaKm3LcFNBTGHc2U2FJexG89PYHh_D2eJ5G4xmrZrEyGHhXyOLby_jkSFQKvp88Zj7FjM/s400/100_0420.jpg" border="0" /><br /><div> </div><div align="center">Bath time for both of us</div><div align="center"> </div><div align="center"> </div><div align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4o97anhg_NXpEKEvSFuoBjpBvjUpP_JKBYTP1NysgSUa0QNHsDZhHJUNv6e_njpPFsyUJl31AhbqXr3B3HVJJTEjyKLCqi4xfk7NM_N4iZeFurgKrfAg9VIyG7-LTMjayopb4kgSeHOo/s1600-h/100_0423.jpg"><img id="BLOGGER_PHOTO_ID_5394129706558471602" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 300px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4o97anhg_NXpEKEvSFuoBjpBvjUpP_JKBYTP1NysgSUa0QNHsDZhHJUNv6e_njpPFsyUJl31AhbqXr3B3HVJJTEjyKLCqi4xfk7NM_N4iZeFurgKrfAg9VIyG7-LTMjayopb4kgSeHOo/s400/100_0423.jpg" border="0" /></a></div><div align="center"> </div><div align="center"> </div><div align="center">All Clean!<br /><br /><div> </div><div><img id="BLOGGER_PHOTO_ID_5394129714547618770" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 300px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMf4RHw3xtCwRzA6Mb_nU0G0yjtko2JrD5_bl1xiXBOTmMMCuGxnuOZln0xd8R-Bz07hdW4v2jw2wsUWmE1HkaHqjzJ7DIWhHnIGDaEoYG8TGw7Fc-T4pw2ZHXpCU43HtjSTMuRFu-Zyg/s400/100_0424.jpg" border="0" /><br /><br /><br /><div><br /><br /><br /><br /><div></div></div></div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com7tag:blogger.com,1999:blog-8783300170692006754.post-11150843804512608482009-10-18T19:39:00.003-05:002009-10-18T19:50:51.593-05:00Coming Home<div align="center">Going mobile for the first time. Trying out the NICU stroller a week ago. </div><img id="BLOGGER_PHOTO_ID_5394105743591894706" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 300px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-rV3XpKjFDzhU2yPrqas9UBOL5R8FSCq7P3j67YwgrpX8xrSKL0_g4RzaA7cqgjbk9KM7Yjo6t3Ork7ocgL-mIctQvkVbzl1X2uS_cWTHxblXupNS5EWi4Z9izgBUWGBSSdhU97hlnuQ/s400/100_0406.jpg" border="0" /><br /><div align="center"> Sitting in the car seat waiting to burn some rubber!<br /><br /><br /></div><div align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYHBrh0fil1Sg8OtxSawo2h86vzjmwGOYxeQVkQ0g8-QAwYwBJyYYxqT0ZTV718inxobl6bCJ9GsSYcgA_toibwH8ehbi-QarOeyXkfF8MjTTAN6nmE96I6wHhiPADi25xIAIqcc7NmEE/s1600-h/100_0408.jpg"><img id="BLOGGER_PHOTO_ID_5394105755954068562" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 300px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYHBrh0fil1Sg8OtxSawo2h86vzjmwGOYxeQVkQ0g8-QAwYwBJyYYxqT0ZTV718inxobl6bCJ9GsSYcgA_toibwH8ehbi-QarOeyXkfF8MjTTAN6nmE96I6wHhiPADi25xIAIqcc7NmEE/s400/100_0408.jpg" border="0" /></a> Not much of a view from down here.<br /><br /><img id="BLOGGER_PHOTO_ID_5394105781069922706" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 300px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpQUt5y1ToQOP2GnA06Gb_p3Qe74SE4UEyzrHeEIoGXUKdj5xaJ-9zE3TT5gNBQUu9eVj6jTDyt4KhBr8Z_1noD1C_HMg1mCdGxV5gQM2HzPiaR_oT9e7ZtkVRpFIijhQVXaVMRIqiAJM/s400/100_0410.jpg" border="0" /><br />Almost Home!<br /><div><br /><br /><img id="BLOGGER_PHOTO_ID_5394105785758546082" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 400px; CURSOR: hand; HEIGHT: 300px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtLBOQMBz3EEMgm97a1AIDj1LYv1ONo0eoj9yV7wTIyqsdRsDWuuHgqaKkX4DNzQPqkzaJNBQJeoEe2E7uomZ9Tv8D9bBtyQzH-EX-W8RLfkXChhNitLqe7uPRVEjJ7trhduoQid2F6HU/s400/100_0411.jpg" border="0" /><br /><br /><div></div></div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com4tag:blogger.com,1999:blog-8783300170692006754.post-65783806086097888672009-10-14T16:44:00.002-05:002009-10-14T16:47:55.495-05:00Coming Home!Gabe is supposed to come home on Saturday!!! I was afraid to post this because I didn't want to jinx it. He will be coming home on oxygen and lots of medicine. We decided on a pediatrician which we feel VERY comfortable with. She has lots of experience with little guys with lots of needs. <br />We ask that you try not to visit Gabe for the first couple of weeks. Also, if anyone has been sick in your household in the past week, PLEASE do not try to visit. We need to be very protective of him not to get sick so he doesn't end up back in the hospital.Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com10tag:blogger.com,1999:blog-8783300170692006754.post-41460740208488185712009-10-10T21:52:00.002-05:002009-10-10T21:58:34.881-05:00Great News!There was some talk that Gabe could possibly be released this next week! We can see the light at the end of the tunnel!<br />He has come down to 1 liter on his oxygen flow, and is taking most of his feedings by mouth. He needs to be doing this for a few days before he can be discharged. They decided to wait on the hernia surgery until after he is older and healthier. That is fine with us, because we just want him home!<br />Dan and I are both sick right now, so please pray that we are healthy by the time he is ready to come home.Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com6tag:blogger.com,1999:blog-8783300170692006754.post-28122993248245590572009-09-30T18:50:00.008-05:002009-09-30T19:09:27.239-05:00Passing the Time with Dad<div align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2WxV-QzRVk9my6DnKhhkFRKofysBYCMEMFjhxgZzS4sJLqTNA438CiM1PTVym_o48dHdTp44WJFjLU0XPdwVj4PSrJ_XO5z337J5rgAKM9SR9Boo20gdVjhcNP0OnDP6XXLkxMknxMQ/s1600-h/100_0384.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387415942235792866" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2WxV-QzRVk9my6DnKhhkFRKofysBYCMEMFjhxgZzS4sJLqTNA438CiM1PTVym_o48dHdTp44WJFjLU0XPdwVj4PSrJ_XO5z337J5rgAKM9SR9Boo20gdVjhcNP0OnDP6XXLkxMknxMQ/s320/100_0384.JPG" /></a> Spending quality time with my dad.<br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7aQyPe7bZUGFh5YhHzkc2P5lokWGE6K3LasLbxXOiJW488gBpgHRAZMNjJG_-MQi0kSGQG6ZreElmIbMFyxsTychyphenhyphenU8vFx-2FffxXdjQSNcQ9BO-Pou97T4v27WY1gcnL5ETJkzjnxA/s1600-h/100_0369.JPG"></a><br /><br /><br /><div align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwf6rNDF6t7CJgquekrRfYk172oAsnVyFj1y0pv9z2RvWaARmAiv9xPinKQlt30buvpVDDl85xcJl5uOICGz48y0LgaHLIn7IItKA8me9EMgGGPK7tNkuaxqz-2W4HSbEPsK9bmI-rnA/s1600-h/100_0392.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387414353061487298" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwf6rNDF6t7CJgquekrRfYk172oAsnVyFj1y0pv9z2RvWaARmAiv9xPinKQlt30buvpVDDl85xcJl5uOICGz48y0LgaHLIn7IItKA8me9EMgGGPK7tNkuaxqz-2W4HSbEPsK9bmI-rnA/s320/100_0392.JPG" /></a> What a wonderful daddy I have, giving me exactly what I want!<br /><br /><br /><div align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZSPf4yMCR-Y-w-k494Rj96DJS2EnLw8eoANG6hk9-ZfpHuftyPNo9yddNKJE5UXjNaylLxTBXLhZTVMHTKetnLRRo8oRJ1kkLwVc-4hJqX-Ja7RnvKWyvsRI_UP0m9Dz0nsR13aYaJA/s1600-h/100_0391.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387413702473974818" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZSPf4yMCR-Y-w-k494Rj96DJS2EnLw8eoANG6hk9-ZfpHuftyPNo9yddNKJE5UXjNaylLxTBXLhZTVMHTKetnLRRo8oRJ1kkLwVc-4hJqX-Ja7RnvKWyvsRI_UP0m9Dz0nsR13aYaJA/s320/100_0391.JPG" /></a> So full...</div><div align="center"> </div><br /><br /><br /><br /><br /></div></div>Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com4tag:blogger.com,1999:blog-8783300170692006754.post-78713394547799055212009-09-28T18:44:00.003-05:002009-09-28T18:49:44.603-05:00Mom Home SickI hate being away from the little guy, but I would hate it even more if I gave him anything to make things worse. I always freak out the day I realize I'm sick, since I would have just seen him the day before giving him kisses without knowing that I could be giving him something. <br />The past couple of days, his oxygen needs have been up about 10%. The doctors aren't worried yet, since it could be a temporary thing that nothing is causing it to be up. Although, it could be a sign of something else. He has been making such great progress lately, that I pray Gabe continues on the road to home at a good pace with no more set backs. <br />I would post a picture, but Dad has the camera to make sure I don't miss anything while I'm away.Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com2tag:blogger.com,1999:blog-8783300170692006754.post-1385228255542687872009-09-23T20:03:00.002-05:002009-09-23T20:12:38.198-05:004 Months and Counting!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiow6Rx0ukSYkhF_FKFw7MecxFI3VtjuM5DnDF2tsvTo4Iz9OBONXFIe5WOwCw2kif63q3tYTVEoeuQwjFm1On5piJKhigqMCuctF_RcF8nLNpgcj1pk5lqs4elODKxOAC1AbJW-JRTAQ/s1600-h/100_0393.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5384835451781613970" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiow6Rx0ukSYkhF_FKFw7MecxFI3VtjuM5DnDF2tsvTo4Iz9OBONXFIe5WOwCw2kif63q3tYTVEoeuQwjFm1On5piJKhigqMCuctF_RcF8nLNpgcj1pk5lqs4elODKxOAC1AbJW-JRTAQ/s320/100_0393.JPG" /></a><br /><div>Gabe celebrated his 4 month birthday on the 21st. He is currently 9 lbs, fiesty, adorable, and loves to be held. He rolled over for the first time this past weekend (Mom and Dad missed it...boo!). He is taking most of his feeds by mouth and has come down from 4 liters of oxygen flow to 3 liters (needs to be at .5 before discharge). He did have his eye surgery, and things look very good. We are currently very busy with work and loving up the little guy in our free time. Sorry for not updating in a long time. As you can see, not a whole lot has changed. </div>Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com9tag:blogger.com,1999:blog-8783300170692006754.post-19779328689441287792009-08-29T07:59:00.003-05:002009-08-29T08:37:39.421-05:00Making Progress<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO6UATfAeBjb_GZ_uhM1ghaOvp4TF0IDhsZ5XWpZV8C4w5k7MfhMuJXT65pPU5YqNIq94aXgaz3hghr3yImEQxj61gAiDOLkbqCiGYWTSGONkR2f9r5N_K1bb9Rr1S2mihaOdjqX-b9g/s1600-h/100_0382.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5375377854104903586" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO6UATfAeBjb_GZ_uhM1ghaOvp4TF0IDhsZ5XWpZV8C4w5k7MfhMuJXT65pPU5YqNIq94aXgaz3hghr3yImEQxj61gAiDOLkbqCiGYWTSGONkR2f9r5N_K1bb9Rr1S2mihaOdjqX-b9g/s320/100_0382.JPG" /></a><br /><div>This week Gabe has made a lot of progress!</div><br /><div>1. He is off the CPAP and on the high flow full time (pray that he stays on the high flow, his CO2 is already creeping up).</div><div>2. He is taking more from the bottle and loving every sip.</div><div>3. The feeding tube is now going through his nose and into his stomach (when Mommy starts feeling better, they'll try feeding the more "natural" way).</div><div>4. Now Gabe has a team of nurses that will take care of him instead of new nurses everyday. This should help him since they know his quirks. </div><br /><div>He had another eye exam on Thursday and the doctor determined that they need to do surgery. Not sure yet the date (probably within a week) or the type of surgery (either laser or an injection into the eyeball). This is a necessary measure to take to prevent our little man from being blind. We were reading that over 90% of preemies don't have a problem with the development of their eyes, but of course Gabe would....sigh. </div><br /><div>I, Mom, have been sick and have not been able to see him since Wed. It is driving me a little crazy, but forced me to relax and take care of myself. I look at everything our little family has gone through with Gabe and see God working in it all. I am ashamed to say that I haven't always trusted God to take care of Gabe through this process, but was extremely humbled when I realized that God trusted US to take care of him. If He is willing to trust us to love this precious little baby, how foolish was I to not trust Him to take care of him! Thank you God for entrusting Gabe's care to measly Dan and I. We will not take your blessing for granted!</div>Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com7tag:blogger.com,1999:blog-8783300170692006754.post-36003209882551014532009-08-23T16:47:00.003-05:002009-08-23T16:54:22.136-05:00Taste TherapyBelow are the stages of taste therapy as enjoyed by Gabe.<br /><br /><br /> Step 1- Suck some milk off of a sponge. Yummy! Gabe was eating/sponging maybe 5-10cc's from his 45cc meal during the past month.<br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgv9CZIM6IYy5ZiHIQt3VwPb9aq2fTHBITI6SfbNGdkAlF0VIx1Lt7jXH8GvTnKcziPGliG9T5nh2TpF_u7oC201zmo6_x-NcsApLinOnP0DvQ6uBI7Kz6sHRMJ0rV_xZIMni4_9enbOjk/s1600-h/100_0359.JPG"><img id="BLOGGER_PHOTO_ID_5373279986259046674" style="WIDTH: 300px; CURSOR: hand; HEIGHT: 400px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgv9CZIM6IYy5ZiHIQt3VwPb9aq2fTHBITI6SfbNGdkAlF0VIx1Lt7jXH8GvTnKcziPGliG9T5nh2TpF_u7oC201zmo6_x-NcsApLinOnP0DvQ6uBI7Kz6sHRMJ0rV_xZIMni4_9enbOjk/s400/100_0359.JPG" border="0" /></a><br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0SvaLxtTggUAmHJjhXfwOp1FYveOx3Pfl8tVkZbk5wDAKFSO7enhPh-9SC_JJVyqqMIEZiJut3euwQE15zI4ui7W1x_gyqr6w3t5PjrMaUYdmhpQnKXClsQ3pECoRZLErvMwoA9dyH6w/s1600-h/100_0358.JPG"><img id="BLOGGER_PHOTO_ID_5373279977350187362" style="WIDTH: 400px; CURSOR: hand; HEIGHT: 300px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0SvaLxtTggUAmHJjhXfwOp1FYveOx3Pfl8tVkZbk5wDAKFSO7enhPh-9SC_JJVyqqMIEZiJut3euwQE15zI4ui7W1x_gyqr6w3t5PjrMaUYdmhpQnKXClsQ3pECoRZLErvMwoA9dyH6w/s400/100_0358.JPG" border="0" /></a><br /><br /><br />Step 2- Take it like a man from the bottle! Right now Gabe is sucking down 15cc twice a day out of a 60cc meal. <br /></div><div> </div><div><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipeG51gFLYi-RnXQp36wxErvjaFT8r-TsG0VZx5cV_HnkuIXuHn1rd4o29PxYiaYxmGGYNwOseKnREFtsTMG-Sexaa_fDp9cxYlsI02rKtTf96bp8Vg5i7k2151lqDI68IezTMaffjuQo/s1600-h/100_0362.JPG"><img id="BLOGGER_PHOTO_ID_5373279993116007026" style="WIDTH: 300px; CURSOR: hand; HEIGHT: 400px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipeG51gFLYi-RnXQp36wxErvjaFT8r-TsG0VZx5cV_HnkuIXuHn1rd4o29PxYiaYxmGGYNwOseKnREFtsTMG-Sexaa_fDp9cxYlsI02rKtTf96bp8Vg5i7k2151lqDI68IezTMaffjuQo/s400/100_0362.JPG" border="0" /></a><br /><br /><br /></div><div></div><div><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRgH0Cur7xSITWK-BgLGHinm3Tf3ZekGjxxYAjnE-G5yL_6pgA-_CWVRpyqAB6MpTNEMPYgj1SswhYNKcSVfTEFItVlCB0veu3oXcV70C0buRjRRYXfUzdlozCwdPY1XWXABjBgGhTMFA/s1600-h/100_0363.JPG"><img id="BLOGGER_PHOTO_ID_5373280006752983506" style="WIDTH: 300px; CURSOR: hand; HEIGHT: 400px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRgH0Cur7xSITWK-BgLGHinm3Tf3ZekGjxxYAjnE-G5yL_6pgA-_CWVRpyqAB6MpTNEMPYgj1SswhYNKcSVfTEFItVlCB0veu3oXcV70C0buRjRRYXfUzdlozCwdPY1XWXABjBgGhTMFA/s400/100_0363.JPG" border="0" /></a><br /></div><div> </div><div>We think mom enjoys the taste therapy just as much as Gabe does!<br /><br /></div><div> </div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com5tag:blogger.com,1999:blog-8783300170692006754.post-80522867665650101492009-08-23T16:40:00.003-05:002009-08-23T16:46:21.475-05:00In the Swing Of Things<p><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dztZUl_Afhx0YtDAzMCPR6wp3fZv-N_yNTvULHdIZPKUvVkQkyV6yGvL8KMp_bTuI76cipSGyBDZO4Z3jZwFw' class='b-hbp-video b-uploaded' frameborder='0'></iframe></p><p>Gabe is big enough to enjoy spending time in a swing. A special thanks to cousin Jacob for growing out of his swing and letting me borrow it!</p>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com2tag:blogger.com,1999:blog-8783300170692006754.post-80237515016747330072009-08-23T16:32:00.002-05:002009-08-23T16:39:24.206-05:003 Months Old<div>Gabe turned 3 months old on 8/21/09. Look how big he is getting! 6 pounds 11 Oz.</div><br /><div><br /></div><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwU03c8ToMcmrRajh4Df9m3ozZSD53BPjl6VDWzhRxNThjGa26YYHHQ0HJXJXd-Hx_SWz5BvhdPweJzRMFw13wc5VAWPVIZi62y7B8TIo-3fPQTDfEjGHalQ1MqunSZ_zu-RtIp20pkJY/s1600-h/100_0364.JPG"><img id="BLOGGER_PHOTO_ID_5373275668928690610" style="WIDTH: 300px; CURSOR: hand; HEIGHT: 400px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwU03c8ToMcmrRajh4Df9m3ozZSD53BPjl6VDWzhRxNThjGa26YYHHQ0HJXJXd-Hx_SWz5BvhdPweJzRMFw13wc5VAWPVIZi62y7B8TIo-3fPQTDfEjGHalQ1MqunSZ_zu-RtIp20pkJY/s400/100_0364.JPG" border="0" /></a> </div><br /><div></div><br /><div>Here he is at 2 months.<br /></div><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicE0Gf1mbGTVecZSClGMrnkHuYJ3ApefEVEWYRsfI3k24y9QhOFMZwNr8o2jem7IDKmgKw8_3prmFSM0slvvZFJnDw5DUJjr3KxffvBNl81t-rAUwxTlP8xdTrUKi8FDz-sx0x-mGRUjc/s1600-h/100_0325.JPG"><img id="BLOGGER_PHOTO_ID_5373275989317937730" style="WIDTH: 400px; CURSOR: hand; HEIGHT: 300px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicE0Gf1mbGTVecZSClGMrnkHuYJ3ApefEVEWYRsfI3k24y9QhOFMZwNr8o2jem7IDKmgKw8_3prmFSM0slvvZFJnDw5DUJjr3KxffvBNl81t-rAUwxTlP8xdTrUKi8FDz-sx0x-mGRUjc/s400/100_0325.JPG" border="0" /></a></div><br /><div></div><br /><div align="left">One Month.</div><br /><div></div><br /><div></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiL03YoClvCfDC3MkItyWdjUwKL4-VNkbt05h236OLlji7L3cmq23fnDTUosL1GWvQpsWOJbzxHzUi0H9SQr1Bh-riQ6rplaxjQ0MPOBs6S85KhT2Jmm_mPyGQ-SDcjjviu2ZAUhB63-Lc/s1600-h/100_0302.JPG"><img id="BLOGGER_PHOTO_ID_5373276895918475794" style="WIDTH: 400px; CURSOR: hand; HEIGHT: 300px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiL03YoClvCfDC3MkItyWdjUwKL4-VNkbt05h236OLlji7L3cmq23fnDTUosL1GWvQpsWOJbzxHzUi0H9SQr1Bh-riQ6rplaxjQ0MPOBs6S85KhT2Jmm_mPyGQ-SDcjjviu2ZAUhB63-Lc/s400/100_0302.JPG" border="0" /></a><br /><div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com1tag:blogger.com,1999:blog-8783300170692006754.post-45344600540732760842009-08-19T10:05:00.001-05:002009-08-19T10:05:43.905-05:00Gabe's CO2 is down today. His last number must have been a fluke. He is breathing faster today, which could wear himself out if he doesn't slow down.Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com4tag:blogger.com,1999:blog-8783300170692006754.post-20131476226787062812009-08-17T14:10:00.001-05:002009-08-17T14:10:23.222-05:00Well today his CO2 number is back up again. Its hard to post positive things b/c it always seems to turn negative again.Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com2tag:blogger.com,1999:blog-8783300170692006754.post-48213476143882537942009-08-15T15:46:00.001-05:002009-08-15T15:46:51.277-05:00Gabe has been making some progress during the last 3 days on his CO2 blood level. The levels have slowly been dropping. Mom, dad and the doctor are thrilled.Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com1tag:blogger.com,1999:blog-8783300170692006754.post-50069049132549348202009-08-11T19:08:00.002-05:002009-08-11T19:25:57.004-05:00In Need of a MiracleIt seems like the news never gets better...<br />Yesterday the doctor heard a heart murmur so she ordered a <span id="SPELLING_ERROR_0" class="blsp-spelling-error">cardio</span> echo to see if the pulmonary hypertension had gotten any better from the nitric oxide. The cardiologist said it is still severe and there is a lot of extra pressure on the right side of the heart. If not treated it can cause heart failure on the right side. Therefore they are <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">upping</span> his dosage of the medicine for this. It is a waiting game to see if it helps, and the doctors don't want to up it too much because it is still kind of an experimental drug and they don't know all of the side effects, short and long term.<br />We had a long talk with the doctor today about the plan. Right now we are waiting for a couple of weeks before getting another echo to see if the medicine worked for the pulmonary hypertension. If it didn't, then we may try <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">steroids</span> again, or possibly a <span id="SPELLING_ERROR_3" class="blsp-spelling-corrected">tracheotomy (put back on the ventilator, but the tube will be surgically put into his trachea on throat area, can be on this anywhere from 6 months to 2 years)</span>. <br />As you can see things aren't good at this point. What Dan and I really need right now is lots and lots of prayer that the medicine he is on works, and he gets better or shows improvment very soon. We both are trying to keep the faith and not lose hope, but we are pretty broken down at this point. God says he won't give us more than we can handle, and I'm thinking, "how much more can we really handle!?" We just need a miracle for Gabe.Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com10tag:blogger.com,1999:blog-8783300170692006754.post-60007528253004170472009-08-05T17:54:00.002-05:002009-08-05T18:02:17.970-05:00Gabe's PH :(Gabe's Pulmonary Hypertension (PH) is really slowing down the progress for going home. The doctor's are starting Gabe on a second type of medication to help relax his blood pressure in his lungs. <br /><br />We learned today that PH is the most severe side effect of Chronic Lung Disease. Please pray that Gabe responds to the medication and grows out of both the PH and Lung Disease. We <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">disparately</span> want to see Gabe make progress and are praying for a Miracle.<br /><br />Gabe also gets upset with the CPAP head gear. Everytime he moves around the mask or nose prongs push on his nose. It must be uncomfortable! The doctor's are telling us that they need to focuse on the PH before working him off of the CPAP.Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com4tag:blogger.com,1999:blog-8783300170692006754.post-56879840246268167412009-07-31T08:35:00.005-05:002009-07-31T09:02:58.445-05:00Long Time<div align="center">All clean and bright-eyed for the camera!</div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5364623730632208530" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBh1kHQyBsotJBVnX3PUvrsxWU4PjkINkS62PiG_5xao0Y4ifNTT3NxDLO3deRA7Rj0DctL6FpPte2Q6-CWlNKKGJZsaDaa9xx4ZpDXLbWc2-sifui7q_14QXZXATo9hkTKhHUiCJo0Q/s320/100_0346.JPG" /><br /><div></div><br /><div align="center">Getting all clean in his first bath with Mom and Dad!</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKkE5T33GZIALruHKx4f86hYfqm5BhpW2OF-PFTCrfB1VEcswY-p3e2blvuyXmhEpa4Sn-Mf3a8L3utXPl9i84lAdY-MvIi8Db2aF9lZeURDZ0w4KRjlApmDxE9CU5ttxCPe_aaYEqbg/s1600-h/100_0341.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5364623040487061106" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKkE5T33GZIALruHKx4f86hYfqm5BhpW2OF-PFTCrfB1VEcswY-p3e2blvuyXmhEpa4Sn-Mf3a8L3utXPl9i84lAdY-MvIi8Db2aF9lZeURDZ0w4KRjlApmDxE9CU5ttxCPe_aaYEqbg/s320/100_0341.JPG" /></a><br /><div align="center">Gabe in his new fancy crib!</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDx6qhjTIdusWhV5BIJxAmx25nWqSfqnUV6SCfn3X1lDJnqNSNXLn7nI2G1-nlL-m6OQdMeqvVCTybN-u2VHAXl2PMwqs6NUJ748eU-0AED2Se4I1CtiT87QPMXAnmCIUGoyLQfYoMuA/s1600-h/100_0332.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5364621905448251682" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDx6qhjTIdusWhV5BIJxAmx25nWqSfqnUV6SCfn3X1lDJnqNSNXLn7nI2G1-nlL-m6OQdMeqvVCTybN-u2VHAXl2PMwqs6NUJ748eU-0AED2Se4I1CtiT87QPMXAnmCIUGoyLQfYoMuA/s320/100_0332.JPG" /></a></div><div><div>Sorry it has been so long since the last update. </div><div>We were trying to get him weaned from the CPAP. He was 6 hrs on CPAP, 6 hrs. on high-flow cannula for a couple of weeks. Then last week it seemed like he was ready to alternate 8 hrs. on high-flow, and only 4 hours on CPAP. Well, it didn't last long before his CO2 levels skyrocketed and he had to go on CPAP full time. Unfortunately. It has been a hard road since then. He hasn't been able to come off the CPAP since. When they try high-flow for even a short time, his CO2 goes into the 90s. </div><div>Our amazing doctor this week was considering steriods, but she wanted to get a cardio echo to make sure nothing was wrong with his heart. The cardiologist found that he has pulmonary hypertension which is when the heart is stressed and it constricts the heart. He has this because of his chronic lung disease, but this prevents his lungs from getting better. They work against each other. Therefore, they put him on nitric oxide (not laughing gas) that is supposed to relax and open up his heart. </div><div>Then they thought he had an infection yesterday because he was really pale and higher CO2s. This turned out to not be the case.</div><div>NOW! they are starting him on a high doseage of hydrocortizone for almost 2 weeks to try to get these lungs better. The doctor wanted to stay away from the steriod they used to get off of the ventilator because it has some neurological side effects, especially in the brain. So we are not expecting results right away like we saw before.</div><br /><div>PLEASE PRAY FOR THESE TO WORK WITH NO SIDE EFFECTS!!!</div><br /><br /><br /><div></div></div></div>Gabe's Momhttp://www.blogger.com/profile/08604977446592490649noreply@blogger.com4tag:blogger.com,1999:blog-8783300170692006754.post-8537460289412271642009-07-21T21:48:00.003-05:002009-07-21T21:55:04.464-05:002 Months Old<div align="center"><span style="font-size:130%;">My stuffed puppy doesn't look that big anymore!!</span></div><br /><br /><br /><div align="center">7/21/09</div><br /><br /><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5361111738576695922" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgASTUhShyphenhyphenpVOEnqkv2Ldg0pH7PphgUGs2drielONAuXHN1SYIx6k5VcZqswFzoOfqOtvY1_61fmFdivoK1QhinWJXH5qUTcgSE_KPA35Qi4ddvlW0KwzTbZdFNPXE4_D78n6_5LR6pEBs/s400/100_0327.JPG" /><br /><div align="center"> </div><div align="center"> </div><div align="center">6/21/09</div><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkb1mMcXzAJ2gcYbY-U_CxGCiR7ycrjuJ1j7KIe-pMhLQ1Ikck3f-6o_oXfvbCCZjVmOxsLrmWzY0wUHEM9IbWIlEVSxkhJMiladddzZF3ZsItF9GFXavFHmVbvfeZc9t3PhWnCJprY0k/s1600-h/100_0302.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5361111744286368322" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkb1mMcXzAJ2gcYbY-U_CxGCiR7ycrjuJ1j7KIe-pMhLQ1Ikck3f-6o_oXfvbCCZjVmOxsLrmWzY0wUHEM9IbWIlEVSxkhJMiladddzZF3ZsItF9GFXavFHmVbvfeZc9t3PhWnCJprY0k/s400/100_0302.JPG" /></a><br /><div><br /><div></div><br /><br /><div></div></div>Gabe's Dadhttp://www.blogger.com/profile/16964674824653090376noreply@blogger.com6